1. Patient and Family Experience Summit Dr Kate Granger ST5 Doctor in Elderly Medicine & terminally ill cancer patient

2. About Me….

3. What I’m going to talk about Experiences as a patient Communication Undergoing procedures Deciding to stop chemotherapy The impact of illness on me as a doctor Communication Advocacy Importance of Palliative Care

4. My experience on the other side as a cancer patient

5. To me being a patient is… Embarrassing Undignified Frightening Stressful Time consuming Isolating

6. Simple as 1,2,3…

7. Listen

8. Imagine this scenario… I am alone I am in agony A junior doctor I have never met before Tells me I have metastatic cancer… He then leaves me without telling the nurses what he has just said, does not ask if I would like him to get anyone for me and I never see him again

9. Finding out my definitive diagnosis My Consultant sees me with his junior team He asks if I want anyone with me An appropriate warning shot is fired I am gently told that I have DSRCT He holds my hand When I break down emotionally and ask the juniors to leave it is fine Lots of quiet time for the news to settle My questions are answered at an appropriate level

10. Procedure after procedure Retrograde bilateral ureteric stent insertion 3 x nephrostomies 2 x omental biopsies Hickman line insertion Flexible cystoscopy and stent removal Antegrade bilateral ureteric stent insertion Hickman line removal (and numerous venepunctures, cannulations, intimate examinations etc)

11. Dignity!

12. Deciding to stop New Year’s Eve 2011 In hospital with febrile neutropaenia and peritonitis Burdens of treatment outweighing benefits Perceived as ‘giving up’ by some Relief from others Consultant tried to talk me into continuing…

13. Impact of terminal illness on me as a practising doctor

14. Communication Importance of the ‘Little Things’

15. Breaking bad news Right time, right person, right setting, right after-care

16. Advocacy I can advocate for myself effectively Many of my patients cannot…

17. Palliative Care Arguably the most important time in healthcare terms for a patient Palliative Care is everyone’s business

18. Any questions?

19. To summarise Serious illness has had a major impact on me as a doctor Communication, communication, communication Patient-centred care is the Holy Grail Patients are individual people first and foremost; they are not just disease entities Time to care

20. www.theothersidestory.co.uk Shameless self-promotion…